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20 August 2026
Phillip Yeoh has led a specialist nurse-led endocrine and diabetes service at The London Clinic for around 25 years. His research into adrenocortical carcinoma (ACC) is now published in Frontiers in Endocrinology.
Consultant Nurse in Endocrinology, Phillip Yeoh, leads a specialist nurse-led endocrine and diabetes service and has supported many people with complex adrenal conditions.
ACC (adrenocortical carcinoma)is a rare cancer that develops in the outer layer of the adrenal glands, which sit above the kidneys and produces hormones that help the body function.
Phillip’s PhD, which he did at King’s College London, explored what it is really like to live with the condition, including its effect on relationships, identity, daily life, and hopes for the future.
“It is about understanding the human experience of living with a devastating disease,” Phillip says.
“When I looked into the evidence, I realised people with this condition had a very poor quality of life,” he says. “But nobody had really interviewed them in depth about what it was like to live with it.”Consultant Nurse in Endocrinology, Phillip Yeoh
Phillip interviewed 21 people living with ACC as part of his PhD. They were aged between 28 and 74 and came from the UK, the US, Canada, several European countries, Nigeria, and Australia.
International patient organisations helped him connect with people from different backgrounds and at different stages of the condition. Phillip then spent two years studying the accounts and identifying the experiences that participants shared.
Participants described the uncertainty of living with ACC, the physical effects of treatment, fear that the cancer might return, and the strain placed on relationships.
Many also spoke about feeling isolated because so few people understood their condition. Some felt they needed to appear strong for their families, even when they were struggling themselves.
Participants also described how supportive relationships with healthcare professionals helped them adjust, find purpose, and continue enjoying important parts of their lives.
His research calls for more personalised care that considers the whole person. Recommendations include specialist nursing support, better access to psychological care, clear information about the condition, and more support for families and carers.
It also recommends offering support from the point of diagnosis, instead of waiting for people to ask for help when they may already be struggling.
The study also highlights the need for better education for patients and families, stronger links with patient organisations, and more joined-up care.
“We think we are trying to save someone’s life, but we also need to understand what that life feels like for them,” Phillip says.
Through his clinical work and research, which was supported by The London Clinic, Phillip is helping people living with a rare cancer feel heard, understood, and better supported.
Read Phillip’s paper in Frontiers in Endocrinology.
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